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Grit, Grace, and Gratitude

This life, this pandemic pandemonium demands grit, grace, and gratitude. Grit, the stubborn refusal to be crushed or conquered by adversity, and the unquenchable intention to heal from, to grow through [it].  Grace, the extension of kindness to myself, my family and to others, no matter what our differences Gratitude, the most effective antidote for … Continue reading Grit, Grace, and Gratitude

Timeline and Recovery: COVID19-like Illness

As someone who lives with a suppressed immune system, I want to share the timeline of my recent COVID19-like illness to educate and to equip you should you find your symptoms being dismissed as mild to moderate and instructed to ride it out at home unless you get worse. Quite candidly, unless we, the medically vulnerable, … Continue reading Timeline and Recovery: COVID19-like Illness

Symptoms, Swabs, and False Negatives: an Update

Symptoms, swabs, and false negatives led to my extroverted self being quarantined in our guest room for a few too many days at the end of March. On Tuesday 3/24, I developed a scratchy throat followed in short order by a temperature of 100.2F which scored me a ticket to get swabbed for COVID19. Three … Continue reading Symptoms, Swabs, and False Negatives: an Update

COVID-19: Survivor, Shelter in Place and Keep your Distance

A few days ago, I wrote about COVID-19 and the ‘Vulnerables’. Long term survivor of childhood cancer, adolescent cancer, and young adult cancer, it is ESSENTIAL to our wellness that we ’shelter in place' AND master the fine art of ’social distancing’.I'd like to emphasize once again the need for calm to prevail in response … Continue reading COVID-19: Survivor, Shelter in Place and Keep your Distance

Vulnerability and a Globetrotting Virus

There is nothing quite like a globetrotting virus completely unknown to the human body and invisible to the naked eye to evoke feelings of exposure, vulnerability, uncertainty, anxiety, and fear of the unknown. Am I right, or am I am right? I know I am not alone in sitting with these feelings because I understand … Continue reading Vulnerability and a Globetrotting Virus

COVID-19 and the ‘Vulnerables’

Let me say that while there is a critical need for all of us to remain calm as we seek to mitigate the spread of COVID-19 and to preserve, to restore the health and safety of ourselves, our families, our communities, our nation, and yes, the world, there is a corresponding responsibility for each of … Continue reading COVID-19 and the ‘Vulnerables’

Heart Transplant and Loss

Well, I have a post entitled, 'Hibernation: Kidding, Kind of', almost ready to publish; however, this week has not resembled what it looked like on my calendar. In fact, the only thing that remained on the calendar this week was my husband traveling to NYC on business; everything else, and I do mean everything, became … Continue reading Heart Transplant and Loss

In the Arena: This Day, Every Day

Without a doubt, one of my favorite speeches, the 'Man in the Arena' speech, was delivered by Theodore Roosevelt on April 23, 1910, at the Sorbonne in Paris, France. While I have many thoughts about September as it draws to a close today, I am choosing to use Roosevelt's words instead of my own. "It … Continue reading In the Arena: This Day, Every Day

Survivorship Awareness AND Action Ribbon: What Color?!

As the end of September quickly approaches, I find myself wondering if there were a survivorship awareness AND action ribbon, what color would it be?! I've said it before, and I'll say it again: the greatest threat to our health and wellbeing is our lack of knowledge regarding our risk for potential late [side] effects … Continue reading Survivorship Awareness AND Action Ribbon: What Color?!

Strong, but Exhausted

I received a text message today from a young adult survivor of Hodgkin's Disease that I met years ago when I spoke at a conference on cardiac late effects. He became a friend-faithful. His text read, "Steph, I just wanted to tell you how proud I am of how strong you are and the difference … Continue reading Strong, but Exhausted