Surviving Survivorship: Cancer Treatment-Related Late Effects

A dear friend and fellow survivor who died several years ago of heart failure caused by mantle radiation and doxorubicin had a blog entitled 'Surviving Survivorship.' She made me promise to use that term, phrase, idea, reality in a way that would benefit other adult survivors of childhood and AYA cancers. It's taken me this … Continue reading Surviving Survivorship: Cancer Treatment-Related Late Effects

Being Heard

This post is going to be about how important being heard has been to me across the years since my diagnosis in 1978 as late effects have surfaced, and in many instances, persist. but first For some reason, I decided to look for an image to pair with the post before I wrote a single … Continue reading Being Heard

Game Day Rituals

Game Days as defined by this survivor are days filled with routine follow up surveillance appointments [and] diagnostics (mammograms, MRIs, ECHO)tests. Game days can evoke a great deal of anxiety as you well know and I dare say that we all have 'game day rituals' we go through to minimize our anxiety and the impact … Continue reading Game Day Rituals

Cancer: 10 Things You Can Do to Help

Being diagnosed with cancer shakes even the strongest individuals to the core as uncertainty is immediately injected in one's world and life will never be the same. Your life becomes divided between B.C. and A.C. (Before Cancer and After Cancer). There are, however, things you, family, friends, and friends of friends can do to make … Continue reading Cancer: 10 Things You Can Do to Help

Find Your Tribe

Find your Tribe. It's a matter of great import and I’ve got some thoughts to share on this under-addressed, yet oh so critical aspect of the lived experience of cancer from diagnosis [and] treatment to the end of active treatment, the living out of the cure and the encountering of late effects of cancer treatment. … Continue reading Find Your Tribe

Participating in Your Care: the Benefits

A few days ago I posted a link to a review paper looking at the benefits of individuals participating in their healthcare [and] the healthcare decision-making process. CLICK HERE to read the review piece. Up until the last decade, the practice of medicine could be described as paternalistic with blind obedience on the part of … Continue reading Participating in Your Care: the Benefits

Working Smart: Minimizing Infectious Risk

Well, cold and flu season has arrived, so I thought I'd take the opportunity to share with you steps that I take to protect my health and wellness during the winter months. The first rule of heart transplant is to avoid large crowds, especially during winter months. I, like all organ recipients, am immune compromised … Continue reading Working Smart: Minimizing Infectious Risk

Begin: Stand Up for YOU

As I posted, my one little word that I'm hoping will have a BIG impact on my heart-soul this year is 'begin'. I wanted to share an encounter I had today with a radiology group that speaks to the importance that we all begin to stand up for ourselves and stop blindly paying for services … Continue reading Begin: Stand Up for YOU

Total Body Skin Check

Well, my medical year in review includes something that I believe gets looked at every day, but it all to often overlooked in the care of the adult survivor of childhood cancer who received radiation. I will link to the Children's Oncology Group/s risk factors and guidelines at the end of the post. This year … Continue reading Total Body Skin Check