A dear friend and fellow survivor who died several years ago of heart failure caused by mantle radiation and doxorubicin had a blog entitled 'Surviving Survivorship.' She made me promise to use that term, phrase, idea, reality in a way that would benefit other adult survivors of childhood and AYA cancers. It's taken me this … Continue reading Surviving Survivorship: Cancer Treatment-Related Late Effects
I recently watched Suleika Jaouad's TEDtalk and so much of what she said resonated with me not so much as a childhood cancer survivor but as heart failure [and] transplant survivor. She addressed the myths that are played out in social media using adjectives like "untrue", even "dangerous" as they "erase" the very REAL challenges … Continue reading REALity Check
It's been a while since I reflected on WHY I blog; I've had some time on my hands of late recovering from a 'bout of 'should-have-gone-to-the-hospital' pneumonia, so I thought I'd share my reasons for blogging. I blog for a few reasons: to infuse hope, light into places of despair, darkness to educate, equip, and … Continue reading Why I blog
"Without the organ donor, there is no story, no hope, no transplant. But when there is an organ donor, life springs from death, sorrow turns to hope, and a terrible loss becomes a gift." ~UNOS Without my organ donor, both her story and my story, would have ended on 4/21/2008; her story at 17 and … Continue reading Without the Organ Donor
Eleven years ago this month, my heart was failing, I was dying, and my last life goal was to live to see our son turn 5 thinking that he might have a memory or 2 of me that were his and not merely stories someone had told him about me. I'll never forget his 5th … Continue reading Life Goal: Celebrate Everything and Pay It Forward
Although professionally, I was a pediatric oncology nurse practitioner prior to my heart transplant, I write this letter as an individual who lives with long-lasting late effects stemming from the successful treatment of Ewing's Sarcoma as a child in the late 1970's along with the daily implications of immunosuppression. Dear Healthcare Providers, I write because I … Continue reading An Open Letter to Healthcare Providers
On October 5th, I had the distinct privilege of giving the keynote address at the Rutledge Foundation's Hearts of Gold Luncheon: Accelerating the Path to Personalized Cancer Therapy in Fort Worth, Texas. It is always a JOY to share my lived experience as a young adult survivor of Ewing's Sarcoma; however, this was a particularly … Continue reading Hearts of Gold 2017
Living the Cure is ALL about seeking and cultivating WELLNESS in every area of your life while being ever mindful of your cancer treatment history and the risks you carry for treatment-related late effects.