As the end of September quickly approaches, I find myself wondering if there were a survivorship awareness AND action ribbon, what color would it be?! I've said it before, and I'll say it again: the greatest threat to our health and wellbeing is our lack of knowledge regarding our risk for potential late [side] effects … Continue reading Survivorship Awareness AND Action Ribbon: What Color?!
As anyone with limited stamina for whatever reason knows all too well, you have to work smart, so here are some of my best tips, tricks, and props regarding the basics of 'the daily', so to speak. Plan: I have a bullet journal that houses the daily 'to-do' list; I review every day always looking … Continue reading Working Smart: the Basics
Game Days as defined by this survivor are days filled with routine follow up surveillance appointments [and] diagnostics (mammograms, MRIs, ECHO)tests. Game days can evoke a great deal of anxiety as you well know and I dare say that we all have 'game day rituals' we go through to minimize our anxiety and the impact … Continue reading Game Day Rituals
There are lots of things to consider when you're not in 'your Kansas' anymore; med schedules & time zones being 2 of them for me. As a heart transplant recipient, I will take anti-rejection medications every 12 hours sharp for the rest of my life. It's not a big deal; it's become part of my … Continue reading Med Schedules & Time Zones
I'm a little quirky when it comes to dates. I can't forget them: the good, the bad, or the ugly. Believe me, I've tried. Last December, I wrote Anniversaries: Do They Serve You OR Hurt You? as I was struggling to stay present in the moments of my life because I was remembering (vividly); events … Continue reading What’s Your Date?
Cancer survivorship and adulting is A LOT for anyone to manage, but especially if you're an emerging young adult preoccupied with employability, health insurance coverage, and independent living. However, part of 'adulting' is recognizing that the lifelong need for customized follow up medical care because of your cancer treatment rests squarely on your shoulders and … Continue reading Survivorship and Adulting
Find your Tribe. It's a matter of great import and I’ve got some thoughts to share on this under-addressed, yet oh so critical aspect of the lived experience of cancer from diagnosis [and] treatment to the end of active treatment, the living out of the cure and the encountering of late effects of cancer treatment. … Continue reading Find Your Tribe
Sadly, I am waking up to a house of illin' this morning. Everyone except me is sick with a stomach bug of some sort which is giving rise to this post. How exactly does an immune compromised wife [and] mom care for her sick family while protecting herself from catching it as well? Well, we … Continue reading Illness in the House
A few days ago I posted a link to a review paper looking at the benefits of individuals participating in their healthcare [and] the healthcare decision-making process. CLICK HERE to read the review piece. Up until the last decade, the practice of medicine could be described as paternalistic with blind obedience on the part of … Continue reading Participating in Your Care: the Benefits
Well, cold and flu season has arrived, so I thought I'd take the opportunity to share with you steps that I take to protect my health and wellness during the winter months. The first rule of heart transplant is to avoid large crowds, especially during winter months. I, like all organ recipients, am immune compromised … Continue reading Working Smart: Minimizing Infectious Risk