Working Smart: the Basics

As anyone with limited stamina for whatever reason knows all too well, you have to work smart, so here are some of my best tips, tricks, and props regarding the basics of 'the daily', so to speak. Plan: I have a bullet journal that houses the daily 'to-do' list; I review every day always looking … Continue reading Working Smart: the Basics

Game Day Rituals

Game Days as defined by this survivor are days filled with routine follow up surveillance appointments [and] diagnostics (mammograms, MRIs, ECHO)tests. Game days can evoke a great deal of anxiety as you well know and I dare say that we all have 'game day rituals' we go through to minimize our anxiety and the impact … Continue reading Game Day Rituals

Med Schedules & Time Zones

There are lots of things to consider when you're not in 'your Kansas' anymore; med schedules & time zones being 2 of them for me. As a heart transplant recipient, I will take anti-rejection medications every 12 hours sharp for the rest of my life. It's not a big deal; it's become part of my … Continue reading Med Schedules & Time Zones

What’s Your Date?

I'm a little quirky when it comes to dates. I can't forget them: the good, the bad, or the ugly. Believe me, I've tried. Last December, I wrote Anniversaries: Do They Serve You OR Hurt You? as I was struggling to stay present in the moments of my life because I was remembering (vividly); events … Continue reading What’s Your Date?

Find Your Tribe

Find your Tribe. It's a matter of great import and I’ve got some thoughts to share on this under-addressed, yet oh so critical aspect of the lived experience of cancer from diagnosis [and] treatment to the end of active treatment, the living out of the cure and the encountering of late effects of cancer treatment. … Continue reading Find Your Tribe

Illness in the House

Sadly, I am waking up to a house of illin' this morning. Everyone except me is sick with a stomach bug of some sort which is giving rise to this post. How exactly does an immune compromised wife [and] mom care for her sick family while protecting herself from catching it as well? Well, we … Continue reading Illness in the House

Participating in Your Care: the Benefits

A few days ago I posted a link to a review paper looking at the benefits of individuals participating in their healthcare [and] the healthcare decision-making process. CLICK HERE to read the review piece. Up until the last decade, the practice of medicine could be described as paternalistic with blind obedience on the part of … Continue reading Participating in Your Care: the Benefits

Working Smart: Minimizing Infectious Risk

Well, cold and flu season has arrived, so I thought I'd take the opportunity to share with you steps that I take to protect my health and wellness during the winter months. The first rule of heart transplant is to avoid large crowds, especially during winter months. I, like all organ recipients, am immune compromised … Continue reading Working Smart: Minimizing Infectious Risk

Begin: Stand Up for YOU

As I posted, my one little word that I'm hoping will have a BIG impact on my heart-soul this year is 'begin'. I wanted to share an encounter I had today with a radiology group that speaks to the importance that we all begin to stand up for ourselves and stop blindly paying for services … Continue reading Begin: Stand Up for YOU