Working Smart: Minimizing Infectious Risk

Well, cold and flu season has arrived, so I thought I'd take the opportunity to share with you steps that I take to protect my health and wellness during the winter months. The first rule of heart transplant is to avoid large crowds, especially during winter months. I, like all organ recipients, am immune compromised … Continue reading Working Smart: Minimizing Infectious Risk

Begin: Stand Up for YOU

As I posted, my one little word that I'm hoping will have a BIG impact on my heart-soul this year is 'begin'. I wanted to share an encounter I had today with a radiology group that speaks to the importance that we all begin to stand up for ourselves and stop blindly paying for services … Continue reading Begin: Stand Up for YOU

Total Body Skin Check

Well, my medical year in review includes something that I believe gets looked at every day, but it all to often overlooked in the care of the adult survivor of childhood cancer who received radiation. I will link to the Children's Oncology Group/s risk factors and guidelines at the end of the post. This year … Continue reading Total Body Skin Check

Working Smart: Grocery Delivery and/or Pick Up

Living with a chronic illness requires one to work smart, to listen to one's body, and to be flexible on a daily basis. Today, I am sharing my grocery shopping tips, tricks, and props. I really must confess that my dislike, borderline hate, of the grocery store predates my heart transplant and while I'm no fan … Continue reading Working Smart: Grocery Delivery and/or Pick Up

Self Care: Rationing my Energy

When a resource is limited, the resource is rationed; it's that simple. So, when the resource is energy, it is rationed just like other scarce resources. I ration my energy on a daily basis as a matter of self care, and some days I do a better job than others. Now, if you know me, … Continue reading Self Care: Rationing my Energy

Advocacy, the Highest Form of Self Care

A little something happened last week that bears mentioning as a means to encourage, empower others to speak up on behalf of themselves because no one will EVER be as invested in your outcome as you are. Advocacy is the highest form of self care. On the day of my second home health visit, the … Continue reading Advocacy, the Highest Form of Self Care

Thanksgiving Debrief

That moment that I found myself in the hospital the week before Thanksgiving and it finally hit me; 'I can't do this'. So, I made an executive decision to cancel Thanksgiving meaning that I could not possibly host those we'd invited. My husband has an international travel component to his job as a software engineer … Continue reading Thanksgiving Debrief

Repondez S’il Vous Plait

Repondez S'il Vous Plait, French for 'please reply', is one of the most frequently violated rules of etiquette of our time. According to *Emily Post, the appropriate response to a formal invitation is to respond according to the manner indicated on the invitation itself. If no method is indicated, then a handwritten note or a … Continue reading Repondez S’il Vous Plait

Pace Yourself

When I woke up from my heart transplant, I had these wires called pacing wires that would pace my heart rate up or down depending on what was indicated at the time. There are times like the holidays that I wish I had pacing wires to slow me down when I am exceeding my limits, … Continue reading Pace Yourself

Thanksgiving: Canceled

These last 3 weeks have brought me face to face [yet again] with a reality that I prefer to deny; my stamina, physical, emotional, and mental, takes a hit every time something goes awry within my body’s terrain. Three weeks ago, my husband was out of town for 10 days on business. I spent every … Continue reading Thanksgiving: Canceled