In the Arena: This Day, Every Day

Without a doubt, one of my favorite speeches, the 'Man in the Arena' speech, was delivered by Theodore Roosevelt on April 23, 1910, at the Sorbonne in Paris, France. While I have many thoughts about September as it draws to a close today, I am choosing to use Roosevelt's words instead of my own. "It … Continue reading In the Arena: This Day, Every Day

Survivorship Awareness AND Action Ribbon: What Color?!

As the end of September quickly approaches, I find myself wondering if there were a survivorship awareness AND action ribbon, what color would it be?! I've said it before, and I'll say it again: the greatest threat to our health and wellbeing is our lack of knowledge regarding our risk for potential late [side] effects … Continue reading Survivorship Awareness AND Action Ribbon: What Color?!

Late Effects: Anxiety, Depression, & PTSD

Today, I am attempting my first EVER Facebook LIVE with a closed group Surviving Survivorship that I recently created in an effort to raise awareness regarding late effects of cancer treatment months, years, even decades out from the end of treatment. If you are an adult survivor of cancer diagnosed from birth up to 39 … Continue reading Late Effects: Anxiety, Depression, & PTSD

Surviving Survivorship: Cancer Treatment-Related Late Effects

A dear friend and fellow survivor who died several years ago of heart failure caused by mantle radiation and doxorubicin had a blog entitled 'Surviving Survivorship.' She made me promise to use that term, phrase, idea, reality in a way that would benefit other adult survivors of childhood and AYA cancers. It's taken me this … Continue reading Surviving Survivorship: Cancer Treatment-Related Late Effects

Being Heard

This post is going to be about how important being heard has been to me across the years since my diagnosis in 1978 as late effects have surfaced, and in many instances, persist. but first For some reason, I decided to look for an image to pair with the post before I wrote a single … Continue reading Being Heard

Happy Dance

We used to have a 'happy dance' tradition in our family. When we received good news or reached a milestone, we would do a goofy, happy dance together as a family. My husband and I started this in the early years of our marriage and our son delighted in them throughout his preschool, elementary years. … Continue reading Happy Dance

Game Day Rituals

Game Days as defined by this survivor are days filled with routine follow up surveillance appointments [and] diagnostics (mammograms, MRIs, ECHO)tests. Game days can evoke a great deal of anxiety as you well know and I dare say that we all have 'game day rituals' we go through to minimize our anxiety and the impact … Continue reading Game Day Rituals

One Step

"A journey of a thousand miles begins with one step." ~Lao Tzu I glanced at the date today and remembered that on this date 11 years ago, I began a journey by taking a single step literally 61 days after my heart transplant. It was a milestone, a red letter, write home about it kind … Continue reading One Step

heartSTRONG

Yesterday, I had a routine transplant check up which included an office visit with my nurse practitioner and my local transplant cardiologist as well as labs and an echocardiogram (ECHO) which is an ultrasound of the heart to evaluate structural integrity and heart function. Now that I am 11 years out from my transplant, these … Continue reading heartSTRONG

National Cancer Survivors Day

It was noon before I realized that today is National Cancer Survivors Day and I thought I might want to take my fingers to the keyboard to hammer out some thoughts, reflections, hopes for the future. I have officially lived 40 years beyond what my parents were told to expect; they were told 6 months … Continue reading National Cancer Survivors Day