One Step

"A journey of a thousand miles begins with one step." ~Lao Tzu I glanced at the date today and remembered that on this date 11 years ago, I began a journey by taking a single step literally 61 days after my heart transplant. It was a milestone, a red letter, write home about it kind … Continue reading One Step

heartSTRONG

Yesterday, I had a routine transplant check up which included an office visit with my nurse practitioner and my local transplant cardiologist as well as labs and an echocardiogram (ECHO) which is an ultrasound of the heart to evaluate structural integrity and heart function. Now that I am 11 years out from my transplant, these … Continue reading heartSTRONG

National Cancer Survivors Day

It was noon before I realized that today is National Cancer Survivors Day and I thought I might want to take my fingers to the keyboard to hammer out some thoughts, reflections, hopes for the future. I have officially lived 40 years beyond what my parents were told to expect; they were told 6 months … Continue reading National Cancer Survivors Day

When the Heart Fails

In February 2008 within the confines of the 4 walls of an exam room and a 20-minute not even 8 weeks after my valve surgery, my husband and I were told that my heart was failing. An encounter etched in my memory forever; an encounter characterized by shared disappointment and genuine compassion. After delivering this … Continue reading When the Heart Fails

Heart Failure: the Backstory

In reviewing my posts, I realized that there isn't a post explaining why at 38-years of age my heart failed, and ultimately, died. So, here's the down and dirty, bullet point backstory: 1978: diagnose with Ewing's sarcoma, a soft tissue cancer; I was 8- years-old in the third grade My parents were not given much … Continue reading Heart Failure: the Backstory

Giving Voice to Trauma

"Hiding your core feelings takes an enormous amount of energy, it saps your motivation to pursue worthwhile goals, and it leaves you feeling bored and shut down." The Body Keeps the Score ~Bessel Van der Kolk, MD By way of background for those who likely don't know my story, I was diagnosed and successfully treated for … Continue reading Giving Voice to Trauma

Why I blog

It's been a while since I reflected on WHY I blog; I've had some time on my hands of late recovering from a 'bout of 'should-have-gone-to-the-hospital' pneumonia, so I thought I'd share my reasons for blogging. I blog for a few reasons: to infuse hope, light into places of despair, darkness to educate, equip, and … Continue reading Why I blog

Limits, Boundary Lines

I am human; therefore, I get frustrated, disappointed, angry. Today, I was a little bit of all 3 as I set out to plan a day of ziplining for me and my beloved when we are in Maui this summer celebrating 25 years of the thick and thin that is marriage. Haleakala, Kaanapali, oh my: … Continue reading Limits, Boundary Lines

Life Goal: Celebrate Everything and Pay It Forward

Eleven years ago this month, my heart was failing, I was dying, and my last life goal was to live to see our son turn 5 thinking that he might have a memory or 2 of me that were his and not merely stories someone had told him about me. I'll never forget his 5th … Continue reading Life Goal: Celebrate Everything and Pay It Forward