Symptoms, swabs, and false negatives led to my extroverted self being quarantined in our guest room for a few too many days at the end of March. On Tuesday 3/24, I developed a scratchy throat followed in short order by a temperature of 100.2F which scored me a ticket to get swabbed for COVID19. Three … Continue reading Symptoms, Swabs, and False Negatives: an Update
When a resource is limited, the resource is rationed; it's that simple. So, when the resource is energy, it is rationed just like other scarce resources. I ration my energy on a daily basis as a matter of self care, and some days I do a better job than others. Now, if you know me, … Continue reading Self Care: Rationing my Energy
That moment that I found myself in the hospital the week before Thanksgiving and it finally hit me; 'I can't do this'. So, I made an executive decision to cancel Thanksgiving meaning that I could not possibly host those we'd invited. My husband has an international travel component to his job as a software engineer … Continue reading Thanksgiving Debrief
Repondez S'il Vous Plait, French for 'please reply', is one of the most frequently violated rules of etiquette of our time. According to *Emily Post, the appropriate response to a formal invitation is to respond according to the manner indicated on the invitation itself. If no method is indicated, then a handwritten note or a … Continue reading Repondez S’il Vous Plait
Truth: every wardrobe needs a little black dress or black bow tie just as every cancer survivor needs a cancer treatment summary. A cancer treatment summary is a detailed summary of your diagnosis, treatment along with your risk profile for late effects and recommendations for future monitoring diagnostics. A thorough treatment summary includes the following: … Continue reading Black Dress or Bow Tie: Got One?!
Cluster: WHAT?! Clustering is THE way I 'do' survivorship, cancer and transplant. You see, during the immediate post-transplant period, I was interfacing with the healthcare system almost daily by phone and weekly in person. As time marched forward and I gained confidence in my knowledge of heart transplant and got to know my heart and … Continue reading Cluster: What?!