Yesterday, I had a routine transplant check up which included an office visit with my nurse practitioner and my local transplant cardiologist as well as labs and an echocardiogram (ECHO) which is an ultrasound of the heart to evaluate structural integrity and heart function. Now that I am 11 years out from my transplant, these … Continue reading heartSTRONG
Warning: this post will make you smile and it may make you cry. I'd like to share an encounter I had as my heart was beginning to fail. I was headed to a cardiology appointment one January day. I parked the car, hopped out, locked the doors and headed towards the medical complex. I made … Continue reading Angels Among Us
In reviewing my posts, I realized that there isn't a post explaining why at 38-years of age my heart failed, and ultimately, died. So, here's the bullet point backstory: 1978: diagnose with Ewing's sarcoma, a soft tissue cancer; I was 8- years-old in the third grade My parents were not given much hope that I … Continue reading Heart Failure: the Backstory
"Hiding your core feelings takes an enormous amount of energy, it saps your motivation to pursue worthwhile goals, and it leaves you feeling bored and shut down." The Body Keeps the Score ~Bessel Van der Kolk, MD By way of background for those who likely don't know my story, I was diagnosed and successfully treated for … Continue reading Giving Voice to Trauma
It's been a while since I reflected on WHY I blog; I've had some time on my hands of late recovering from a 'bout of 'should-have-gone-to-the-hospital' pneumonia, so I thought I'd share my reasons for blogging. I blog for a few reasons: to infuse hope, light into places of despair, darkness to educate, equip, and … Continue reading Why I blog
Eleven years ago this month, my heart was failing, I was dying, and my last life goal was to live to see our son turn 5 thinking that he might have a memory or 2 of me that were his and not merely stories someone had told him about me. I'll never forget his 5th … Continue reading Life Goal: Celebrate Everything and Pay It Forward
Living the Cure is ALL about seeking and cultivating WELLNESS in every area of your life while being ever mindful of your cancer treatment history and the risks you carry for treatment-related late effects.