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Heart Transplant and Loss

Well, I have a post entitled, 'Hibernation: Kidding, Kind of', almost ready to publish; however, this week has not resembled what it looked like on my calendar. In fact, the only thing that remained on the calendar this week was my husband traveling to NYC on business; everything else, and I do mean everything, became … Continue reading Heart Transplant and Loss

Med Schedules & Time Zones

There are lots of things to consider when you're not in 'your Kansas' anymore; med schedules & time zones being 2 of them for me. As a heart transplant recipient, I will take anti-rejection medications every 12 hours sharp for the rest of my life. It's not a big deal; it's become part of my … Continue reading Med Schedules & Time Zones

One Step

"A journey of a thousand miles begins with one step." ~Lao Tzu I glanced at the date today and remembered that on this date 11 years ago, I began a journey by taking a single step literally 61 days after my heart transplant. It was a milestone, a red letter, write home about it kind … Continue reading One Step

What’s It Like?

It's not uncommon that I am asked: "what's it like to have someone else's heart beating inside your chest". As you can imagine this isn't a "hi, how are you?" type of question where you reflexively answer "I'm great; you?". No, the answer to this question is multi-faceted and quite complex involving the heart, body, … Continue reading What’s It Like?

heartSTRONG

Yesterday, I had a routine transplant check up which included an office visit with my nurse practitioner and my local transplant cardiologist as well as labs and an echocardiogram (ECHO) which is an ultrasound of the heart to evaluate structural integrity and heart function. Now that I am 11 years out from my transplant, these … Continue reading heartSTRONG

When the Heart Fails

In February 2008 within the confines of the 4 walls of an exam room and a 20-minute not even 8 weeks after my valve surgery, my husband and I were told that my heart was failing. An encounter etched in my memory forever; an encounter characterized by shared disappointment and genuine compassion. After delivering this … Continue reading When the Heart Fails

Heart Failure: the Backstory

In reviewing my posts, I realized that there isn't a post explaining why at 38-years of age my heart failed, and ultimately, died. So, here's the bullet point backstory: 1978: diagnose with Ewing's sarcoma, a soft tissue cancer; I was 8- years-old in the third grade My parents were not given much hope that I … Continue reading Heart Failure: the Backstory

Giving Voice to Trauma

"Hiding your core feelings takes an enormous amount of energy, it saps your motivation to pursue worthwhile goals, and it leaves you feeling bored and shut down." The Body Keeps the Score ~Bessel Van der Kolk, MD By way of background for those who likely don't know my story, I was diagnosed and successfully treated for … Continue reading Giving Voice to Trauma

Limits, Boundary Lines

I am human; therefore, I get frustrated, disappointed, angry. Today, I was a little bit of all 3 as I set out to plan a day of ziplining for me and my beloved when we are in Maui this summer celebrating 25 years of the thick and thin that is marriage. Haleakala, Kaanapali, oh my: … Continue reading Limits, Boundary Lines

Working Smart: Minimizing Infectious Risk

Well, cold and flu season has arrived, so I thought I'd take the opportunity to share with you steps that I take to protect my health and wellness during the winter months. The first rule of heart transplant is to avoid large crowds, especially during winter months. I, like all organ recipients, am immune compromised … Continue reading Working Smart: Minimizing Infectious Risk