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Grit, Grace, and Gratitude

This life, this pandemic pandemonium demands grit, grace, and gratitude. Grit, the stubborn refusal to be crushed or conquered by adversity, and the unquenchable intention to heal from, to grow through [it].  Grace, the extension of kindness to myself, my family and to others, no matter what our differences Gratitude, the most effective antidote for … Continue reading Grit, Grace, and Gratitude

Timeline and Recovery: COVID19-like Illness

As someone who lives with a suppressed immune system, I want to share the timeline of my recent COVID19-like illness to educate and to equip you should you find your symptoms being dismissed as mild to moderate and instructed to ride it out at home unless you get worse.¬†Quite candidly, unless we, the medically vulnerable, … Continue reading Timeline and Recovery: COVID19-like Illness

Symptoms, Swabs, and False Negatives: an Update

Symptoms, swabs, and false negatives led to my extroverted self being quarantined in our guest room for a few too many days at the end of March. On Tuesday 3/24, I developed a scratchy throat followed in short order by a temperature of 100.2F which scored me a ticket to get swabbed for COVID19. Three … Continue reading Symptoms, Swabs, and False Negatives: an Update

Vulnerability and a Globetrotting Virus

There is nothing quite like a globetrotting virus completely unknown to the human body and invisible to the naked eye to evoke feelings of exposure, vulnerability, uncertainty, anxiety, and fear of the unknown. Am I right, or am I am right? I know I am not alone in sitting with these feelings because I understand … Continue reading Vulnerability and a Globetrotting Virus

COVID-19 and the ‘Vulnerables’

Let me say that while there is a critical need for all of us to remain calm as we seek to mitigate the spread of COVID-19 and to preserve, to restore the health and safety of ourselves, our families, our communities, our nation, and yes, the world, there is a corresponding responsibility for each of … Continue reading COVID-19 and the ‘Vulnerables’

Heart Transplant and Loss

Well, I have a post entitled, 'Hibernation: Kidding, Kind of', almost ready to publish; however, this week has not resembled what it looked like on my calendar. In fact, the only thing that remained on the calendar this week was my husband traveling to NYC on business; everything else, and I do mean everything, became … Continue reading Heart Transplant and Loss

Med Schedules & Time Zones

There are lots of things to consider when you're not in 'your Kansas' anymore; med schedules & time zones being 2 of them for me. As a heart transplant recipient, I will take anti-rejection medications every 12 hours sharp for the rest of my life. It's not a big deal; it's become part of my … Continue reading Med Schedules & Time Zones

One Step

"A journey of a thousand miles begins with one step." ~Lao Tzu I glanced at the date today and remembered that on this date 11 years ago, I began a journey by taking a single step literally 61 days after my heart transplant. It was a milestone, a red letter, write home about it kind … Continue reading One Step

What’s It Like?

It's not uncommon that I am asked: "what's it like to have someone else's heart beating inside your chest". As you can imagine this isn't a "hi, how are you?" type of question where you reflexively answer "I'm great; you?". No, the answer to this question is multi-faceted and quite complex involving the heart, body, … Continue reading What’s It Like?

heartSTRONG

Yesterday, I had a routine transplant check up which included an office visit with my nurse practitioner and my local transplant cardiologist as well as labs and an echocardiogram (ECHO) which is an ultrasound of the heart to evaluate structural integrity and heart function. Now that I am 11 years out from my transplant, these … Continue reading heartSTRONG