In February 2008 within the confines of the 4 walls of an exam room and a 20-minute not even 8 weeks after my valve surgery, my husband and I were told that my heart was failing. An encounter etched in my memory forever; an encounter characterized by shared disappointment and genuine compassion. After delivering this … Continue reading When the Heart Fails
In reviewing my posts, I realized that there isn't a post explaining why at 38-years of age my heart failed, and ultimately, died. So, here's the down and dirty, bullet point backstory: 1978: diagnose with Ewing's sarcoma, a soft tissue cancer; I was 8- years-old in the third grade My parents were not given much … Continue reading Heart Failure: the Backstory
"Hiding your core feelings takes an enormous amount of energy, it saps your motivation to pursue worthwhile goals, and it leaves you feeling bored and shut down." The Body Keeps the Score ~Bessel Van der Kolk, MD By way of background for those who likely don't know my story, I was diagnosed and successfully treated for … Continue reading Giving Voice to Trauma
I am human; therefore, I get frustrated, disappointed, angry. Today, I was a little bit of all 3 as I set out to plan a day of ziplining for me and my beloved when we are in Maui this summer celebrating 25 years of the thick and thin that is marriage. Haleakala, Kaanapali, oh my: … Continue reading Limits, Boundary Lines
Well, cold and flu season has arrived, so I thought I'd take the opportunity to share with you steps that I take to protect my health and wellness during the winter months. The first rule of heart transplant is to avoid large crowds, especially during winter months. I, like all organ recipients, am immune compromised … Continue reading Working Smart: Minimizing Infectious Risk
Living with a chronic illness requires one to work smart, to listen to one's body, and to be flexible on a daily basis. Today, I am sharing my grocery shopping tips, tricks, and props. I really must confess that my dislike, borderline hate, of the grocery store predates my heart transplant and while I'm no fan … Continue reading Working Smart: Grocery Delivery and/or Pick Up
That moment that I found myself in the hospital the week before Thanksgiving and it finally hit me; 'I can't do this'. So, I made an executive decision to cancel Thanksgiving meaning that I could not possibly host those we'd invited. My husband has an international travel component to his job as a software engineer … Continue reading Thanksgiving Debrief
Living the Cure is ALL about seeking and cultivating WELLNESS in every area of your life while being ever mindful of your cancer treatment history and the risks you carry for treatment-related late effects.