Surviving Survivorship: Cancer Treatment-Related Late Effects

A dear friend and fellow survivor who died several years ago of heart failure caused by mantle radiation and doxorubicin had a blog entitled 'Surviving Survivorship.' She made me promise to use that term, phrase, idea, reality in a way that would benefit other adult survivors of childhood and AYA cancers. It's taken me this … Continue reading Surviving Survivorship: Cancer Treatment-Related Late Effects

National Cancer Survivors Day

It was noon before I realized that today is National Cancer Survivors Day and I thought I might want to take my fingers to the keyboard to hammer out some thoughts, reflections, hopes for the future. I have officially lived 40 years beyond what my parents were told to expect; they were told 6 months … Continue reading National Cancer Survivors Day

Total Body Skin Check

Well, my medical year in review includes something that I believe gets looked at every day, but it all to often overlooked in the care of the adult survivor of childhood cancer who received radiation. I will link to the Children's Oncology Group/s risk factors and guidelines at the end of the post. This year … Continue reading Total Body Skin Check

Radiation-Associated Breast Cancer and Hormone Exposure: a CCSS* Report

Chest radiation is a well known risk factor for the subsequent development of breast cancer. This study was aimed at exploring the relationship between hormonal factors and the risk of radiation-associated breast cancer among survivors of childhood cancer. Included in the study were 1,108 females diagnosed from 1970 to 1986 who were treated with chest … Continue reading Radiation-Associated Breast Cancer and Hormone Exposure: a CCSS* Report

Treatment-Related Breast Cancer: Survivor, Are You at Risk?

Treatment-Related Breast Cancer: Survivor, Are You at Risk? The risk of developing breast cancer after treatment for a childhood, adolescent, or young adult cancer depends on the type of treatment one received for their original diagnosis. While treatment-related breast cancers affect primarily females, males are also at risk as they, too, have breast tissue. Known … Continue reading Treatment-Related Breast Cancer: Survivor, Are You at Risk?

the ‘Other Guy’ Rule

From the father of an adult survivor of childhood cancer written through his father-eyes, his heart-tender, and in his own words on the lived experience of being told your daughter has cancer, then 30 years later that she needed a new heart. “We tell ourselves it’s always the 'other guy’. It only happens to other … Continue reading the ‘Other Guy’ Rule

Shared Decision Making

I met with my PCP, Dr. Pepper, a couple of weeks ago, to discuss a plan for lung surveillance moving forward. I had several things on my heart and mind that I felt we needed to plan for in the future specific to potential late effects. I have several unique 'things' that place me at … Continue reading Shared Decision Making

Primary Care Provider: Get One!

Fact: primary care providers [PCP]  are essential in the life of the cancer survivor, so get one! Fact: medical education does not speak to the potential late effects of cancer treatment and appropriate screenings across time. Fact: we, survivors, have a tendency to feel safe [and] secure under the umbrella of our oncologists; however, our … Continue reading Primary Care Provider: Get One!