Vulnerability and a Globetrotting Virus

There is nothing quite like a globetrotting virus completely unknown to the human body and invisible to the naked eye to evoke feelings of exposure, vulnerability, uncertainty, anxiety, and fear of the unknown. Am I right, or am I am right? I know I am not alone in sitting with these feelings because I understand … Continue reading Vulnerability and a Globetrotting Virus

Happy Dance

We used to have a 'happy dance' tradition in our family. When we received good news or reached a milestone, we would do a goofy, happy dance together as a family. My husband and I started this in the early years of our marriage and our son delighted in them throughout his preschool, elementary years. … Continue reading Happy Dance

An Open Letter to Healthcare Providers

Although professionally, I was a pediatric oncology nurse practitioner prior to my heart transplant, I write this letter as an individual who lives with long-lasting late effects stemming from the successful treatment of Ewing's Sarcoma as a child in the late 1970's along with the daily implications of immunosuppression. Dear Healthcare Providers, I write because I … Continue reading An Open Letter to Healthcare Providers

Self Care: Rationing my Energy

When a resource is limited, the resource is rationed; it's that simple. So, when the resource is energy, it is rationed just like other scarce resources. I ration my energy on a daily basis as a matter of self care, and some days I do a better job than others. Now, if you know me, … Continue reading Self Care: Rationing my Energy

Thanksgiving: Canceled

These last 3 weeks have brought me face to face [yet again] with a reality that I prefer to deny; my stamina, physical, emotional, and mental, takes a hit every time something goes awry within my body’s terrain. Three weeks ago, my husband was out of town for 10 days on business. I spent every … Continue reading Thanksgiving: Canceled