Survivorship Awareness AND Action Ribbon: What Color?!

As the end of September quickly approaches, I find myself wondering if there were a survivorship awareness AND action ribbon, what color would it be?! I've said it before, and I'll say it again: the greatest threat to our health and wellbeing is our lack of knowledge regarding our risk for potential late [side] effects … Continue reading Survivorship Awareness AND Action Ribbon: What Color?!

Surviving Survivorship: Cancer Treatment-Related Late Effects

A dear friend and fellow survivor who died several years ago of heart failure caused by mantle radiation and doxorubicin had a blog entitled 'Surviving Survivorship.' She made me promise to use that term, phrase, idea, reality in a way that would benefit other adult survivors of childhood and AYA cancers. It's taken me this … Continue reading Surviving Survivorship: Cancer Treatment-Related Late Effects

Being Heard

This post is going to be about how important being heard has been to me across the years since my diagnosis in 1978 as late effects have surfaced, and in many instances, persist. but first For some reason, I decided to look for an image to pair with the post before I wrote a single … Continue reading Being Heard

Happy Dance

We used to have a 'happy dance' tradition in our family. When we received good news or reached a milestone, we would do a goofy, happy dance together as a family. My husband and I started this in the early years of our marriage and our son delighted in them throughout his preschool, elementary years. … Continue reading Happy Dance

One Step

"A journey of a thousand miles begins with one step." ~Lao Tzu I glanced at the date today and remembered that on this date 11 years ago, I began a journey by taking a single step literally 61 days after my heart transplant. It was a milestone, a red letter, write home about it kind … Continue reading One Step

National Cancer Survivors Day

It was noon before I realized that today is National Cancer Survivors Day and I thought I might want to take my fingers to the keyboard to hammer out some thoughts, reflections, hopes for the future. I have officially lived 40 years beyond what my parents were told to expect; they were told 6 months … Continue reading National Cancer Survivors Day

Limits, Boundary Lines

I am human; therefore, I get frustrated, disappointed, angry. Today, I was a little bit of all 3 as I set out to plan a day of ziplining for me and my beloved when we are in Maui this summer celebrating 25 years of the thick and thin that is marriage. Haleakala, Kaanapali, oh my: … Continue reading Limits, Boundary Lines

Begin: Stand Up for YOU

As I posted, my one little word that I'm hoping will have a BIG impact on my heart-soul this year is 'begin'. I wanted to share an encounter I had today with a radiology group that speaks to the importance that we all begin to stand up for ourselves and stop blindly paying for services … Continue reading Begin: Stand Up for YOU

Total Body Skin Check

Well, my medical year in review includes something that I believe gets looked at every day, but it all to often overlooked in the care of the adult survivor of childhood cancer who received radiation. I will link to the Children's Oncology Group/s risk factors and guidelines at the end of the post. This year … Continue reading Total Body Skin Check

Self Care: Rationing my Energy

When a resource is limited, the resource is rationed; it's that simple. So, when the resource is energy, it is rationed just like other scarce resources. I ration my energy on a daily basis as a matter of self care, and some days I do a better job than others. Now, if you know me, … Continue reading Self Care: Rationing my Energy