This life, this pandemic pandemonium demands grit, grace, and gratitude. Grit, the stubborn refusal to be crushed or conquered by adversity, and the unquenchable intention to heal from, to grow through [it]. Grace, the extension of kindness to myself, my family and to others, no matter what our differences Gratitude, the most effective antidote for … Continue reading Grit, Grace, and Gratitude
We used to have a 'happy dance' tradition in our family. When we received good news or reached a milestone, we would do a goofy, happy dance together as a family. My husband and I started this in the early years of our marriage and our son delighted in them throughout his preschool, elementary years. … Continue reading Happy Dance
There are lots of things to consider when you're not in 'your Kansas' anymore; med schedules & time zones being 2 of them for me. As a heart transplant recipient, I will take anti-rejection medications every 12 hours sharp for the rest of my life. It's not a big deal; it's become part of my … Continue reading Med Schedules & Time Zones
"A journey of a thousand miles begins with one step." ~Lao Tzu I glanced at the date today and remembered that on this date 11 years ago, I began a journey by taking a single step literally 61 days after my heart transplant. It was a milestone, a red letter, write home about it kind … Continue reading One Step
I met with my PCP, Dr. Pepper, a couple of weeks ago, to discuss a plan for lung surveillance moving forward. I had several things on my heart and mind that I felt we needed to plan for in the future specific to potential late effects. I have several unique 'things' that place me at … Continue reading Shared Decision Making
It's a 'Monslay Monday'! I woke up at 3 am; 3 am, people. I didn't wake up to go to the bathroom; no, I woke up for the day at 3 am for no good reason. That is the first sign that it's going to take a 'Monslay' kind of attitude to make it through … Continue reading Monslay
Cluster: WHAT?! Clustering is THE way I 'do' survivorship, cancer and transplant. You see, during the immediate post-transplant period, I was interfacing with the healthcare system almost daily by phone and weekly in person. As time marched forward and I gained confidence in my knowledge of heart transplant and got to know my heart and … Continue reading Cluster: What?!
Living the Cure is ALL about seeking and cultivating WELLNESS in every area of your life while being ever mindful of your cancer treatment history and the risks you carry for treatment-related late effects.